CHALLENGE DEMCARE (2008 - 2020)

This NIHR Applied Programme grant built on previous work at Hull on the management of challenging behaviour in dementia at home and in care homes: Link to programme website
http://www.challengedemcare.com/

Challenge Demcare included a systematic Cochrane review, development and testing of an online e- learning and e-tool system and two studies on the management of challenging behaviour: in care homes (ResCare) and in family care (FamCare). Rescare involved reviewing 2185 people in 63 care homes; the trial included 832 residents and 609 hand-on care staff; Famcare involved reviewing 5360 families across 33 services in England and specialist interventions with 157 families. This now complete programme of work is currently translating its knowledge for use by specialist dementia care practitioners in their practice.

Link for the full range of details of projects, publications and related work:
https://drive.google.com/file/d/1NbEp2ecHcr-X7f8_ymPIKGNY74-pC7uP/view?usp=sharing

Link here for Practitioner Tool-Kits and Resources:

‘BEHAVIOUR THAT CHALLENGES’ IN DEMENTIA CARE (2018 - )

Since 2017 we have been updating the 2013 British Psychological Society Briefing ‘Alternatives to Antipsychotic Medication in People with Dementia' https://drive.google.com/file/d/1lSgYF1984mpZVB0HW2MrZv4FMFxpw937/view?usp=shar ing by translating applied research knowledge about psychological approaches to behavioural care - challenges for practice. This is supported by The British Psychological Society, Division of Clinical Psychology, Faculty of the Psychology of Older People - FPOP and is led by Ian James - co-applicant Challenge Demcare (Cumbria, Northumberland, Tyne and Wear NHS Foundation Trust), Esme Moniz-Cook (University of Hull, CI Challenge Demcare) and Frances Duffy (Northern Health and Social Care Trust). This project has involved consultations with key stakeholders including professionals of all disciplines, care home organisations, NHS England networks, people with dementia and families.

Link for projects details and publications: https://drive.google.com/file/d/1Jw6mri-xxqbQAl8VQyakmJrzFjnkHuv-/view

CAREGIVERSPRO-MMD (2015-2019)

CAREGIVERSPRO-MMD was a Horizon 2020 funded project, which designed and piloted a website for people with dementia and their caregivers across four European sites https://caregiversprommd-project.eu/. A support website, designed with people affected by dementia and carers, provided both information and access to a range of support. This included opportunity for online meeting with others, in order to reduce social isolation. Training was given to help people use the website during the pilot. Hull was the UK pilot site for the project and recruited 200 dyads (person with dementia and carer). This project has now ended.

Link for the project details and publications: https://drive.google.com/file/d/1-UJlQLbY6h6GU2yAC6bN0pHYANqVFuiS/view

METHODOLOGY AND MEASUREMENT IN DEMENTIA CARE (2003 - ongoing)

Hull’s applied research on methodology and measurement in dementia has grown from 2003, with a strong focus on validated instruments that can be used in routine clinical practice. Many of our projects from 2008 have been a collaboration between members of the INTERDEM network http://interdem.org/ , with a key programme funded by the EU Joint Programme Neurodegenerative Disease (JPND): Longitudinal Cohorts Working Groups (2014 -2015) ‘Dementia Outcome Measures; charting new territory’ (2014-2015), and a positive psychology perspective to the development of outcome measures.

Key methodological work has outlined the importance of the ‘Implementation Error’ that can arise in studies of effectiveness, quality indicators and meta-ethnographic reviews to synthesise literature related to our research topic.

Link for the full range of projects and their publications: https://drive.google.com/file/d/1rNhCUMQUd9DilG8A9qO0UT4UmRPFyQ0z/view?usp=sharing