PUBLICATIONS

Here are a selection of our group’s publications (from 2016 only)

2020

Allward, C., Dunn, R., Forshaw, G., Rewston, C. & Wass, N. (2020) Mental Wellbeing in People with Dementia Following Cognitive Stimulation Therapy. Dementia, 19(2), 496-504.
https://doi.org/10.1177/1471301217722443

Ballard, C., Orrell, M., Moniz-Cook, E., Woods, R., Whiiaker, R., Corbett, A., Aarsland, D., Murray, J., Lawrence, V., Testad, I., Knapp, M., Romero, R., Zala, D., Stafford, J., Hoare, Z., Garrod, L., Yongzhong, S., McLaughlin, E., Woodward-Carlton, B., Williams, G. & Fossey, J. (2020) Improving mental health and reducing antipsychotic use in people with dementia in care homes: the WHELD research programme including two RCTs. Programme Grants for Applied Research, 8(6). https://doi.org/10.3310/pgfar08060

Broome, E., Coleston-Shields, D., Dening, T., Moniz-Cook, E., Poland, F., Stanyon, M. & Orrell, M. (2020) Achieving Quality and Effectiveness in Dementia using Crisis Teams: a feasibility study protocol. JMIR Research Protocols, 9(10):e18971 https://doi.org/10.2196/18971

Buggins, S-L., Clarke, C. & Wolverson, E . (2020) Resilience in older people living with dementia: A narrative analysis. Dementia. https://doi.org/10.1177/1471301220927614

Clarke, C., Woods, B., Moniz-Cook, E. , Mountain, G., Øksnebjerg, L., Chattat, R., Diaz, A., Gove, D., Vernooij-Dassen., M. & Wolverson, E . (2020) Measuring the well-being of people with dementia : a conceptual scoping review. Health & Quality of Life Outcomes, 18, 249.   https://doi.org/10.1186/s12955-020-01440-x

Conway, L., Wolverson, E. & Clarke, C . (2020) Shared experiences of resilience amongst couples where one partner is living with dementia: A grounded theory study. Frontiers in Medicine: Geriatric Medicine 7, 219. https://doi.org/10.3389/fmed.2020.00219

Csipke, E., Moniz-Cook, E., Leung, P., Yates, L., Birt, L. Walton, H., Hogervorst, E., Mountain, G., Charlesworth, G. & Orrell, M. (2020) Feasibility and acceptability evaluation of the PRIDE (Promoting Independence in Dementia) intervention for living well with dementia. International Psychogeriatrics, 1-14. https://doi.org/10.1017/S1041610220001386

Draper, P. & Hilton, A. (2020) Dignity, well-being and identity: a qualitative study of older people's interpretations of how healthcare workers speak to them. Nursing Older People. https://doi.org/10.7748/nop.2020.e1261

Glover, L., Dyson, J. Cowdell, F. & Kinsey, D. (2020) Health ageing in a deprived northern UK city: A co-creation study. Health & Social Care https://onlinelibrary.wiley.com/doi/10.1111/hsc.13036

Heaton, J., Martyr, A., Nelis, S.M., Marková, I.S., Morris, R.G., Roth, I., Woods, R.T. & Clare, L. (2020) Future outlook of people living alone with early-stage dementia and their non-resident relatives and friends who support them. Ageing & Society. https://doi.org/10.1017/S0144686X20000513

James, I. A., Mahesh, M., Duffy, F., Reichelt, K. & Moniz-Cook, E. (2020) UK Clinician's Views on the Use of Formulations for the Management of BPSD: A Multidisciplinary Survey. Aging & Mental Health https://doi.org/10.1080/13607863.2020.1830944

James, I. A., Reichelt, K., Moniz-Cook, E. & Lee, K. (2020) Challenging Behaviour in Dementia Care: A Novel Framework for Translating Knowledge to Practice. The Cognitive Behaviour Therapist, 13, E43 https://doi.org/10.1017/S1754470X20000434

Keenan, J., Poland, F., Manthorpe, J., Hart, C. & Moniz-Cook, E. (2020) Implementing e-learning and e-tools for care home staff supporting residents with dementia and challenging behaviour: A process evaluation of the ResCare study using normalisation process theory. Dementia, 19(5), 1604 -1620. https://doi.org/10.1177/1471301218803195

Maidment, I., Barton, G., Campbell, N., Shaw, R., Seare N., Fox, C., Iliffe, S., Randle, E., Hilton, A., Brown, G., Barnes, N., Wilcock, J., Gillespie, S. & Damery, S. (2020) MEDREV (pharmacy-health psychology Intervention in people living with dementia with behaviour that challenges): the feasibility of measuring clinical outcomes and costs of the intervention. BMC Health Services Research, 20, 157. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7053151/

Manthorpe, J. & Moniz-Cook, E.D. (eds) (2020) Timely Psychosocial Interventions in Dementia Care. Evidence -Based Practice. London: Jessica Kingsley Publishers. https://www.amazon.co.uk/Timely-Psychosocial-Interventions-Dementia-Care/dp/1787753026

Medea, B., Roberts, M., Dunn, R. & James, I. A. (2020) The Role of Models and Formulations in the Management of Behaviors that Challenge in Dementia. Open Access Journal of Gerontology & Geriatric Medicine, 5(5): 555671 (accepted 16.09.20)

Moniz-Cook, E.D. & Rewston, C. (2020) Choosing Psychosocial Interventions for People with Dementia and their Families: Protocols for Decision-Making. In: Manthorpe, J. & Moniz-Cook, E.D. (eds) Timely Psychosocial Interventions in Dementia Care. Evidence -Based Practice. London: Jessica Kingsley Publishers, 30-47.

Moniz-Cook E.D. (2020) Remembering people with dementia during the COVID-19 crisis. HRB Open Research, 3, 15. https://hrbopenresearch.org/articles/3-15/v1#referee-response-27326

Palese, A., Bressan. V., Hayter, M. & Watson, R. (2020) Enhancing independent eating among older adults with dementia: a scoping review of the state of the conceptual and research literature. BMC Nursing, 19, 32. https://doi.org/10.1186/s12912-020-00425-x

Palese, A., Btissam, A., Hayter, M. & Watson, R. (2020) Fidelity challenges while implementing an intervention aimed at increasing eating performance among nursing home residents with cognitive decline: A multicentre, qualitative descriptive study design. Journal of Clinical Nursing. https://doi.org/10.1111/jocn.15507

Palese, A., Decaro, A., Bressan, V., Marin, M., Achil, I., Hayter, M. & Watson, R. (2020) Measuring the therapeutic properties of nursing home environments in the Italian context: findings from a validation and cross-sectional study design. Annali di igiene: medicina preventiva e di comunita, 32(2), 117-131. https://doi.org/10.7416/ai.2020.2236

Palese, A., Gonella, S., Grassetti, L., Longobardi, M., De Caro, A., Schil, I., Hayter, M. & Watson, R. (2020) What nursing home environments can maximise eating independence among residents with cognitive impairment? Findings from a secondary analysis. Geriatric Nursing. https://doi.org/10.1016/j.gerinurse.2020.03.020

Ragalio, A., Gianelli, M., Moniz-Cook, E . & Manthorpe, J. (2020) Supporting People with dementia through Music. In Manthorpe, J. & Moniz-Cook, E.D. (Eds) Timely Psychosocial Interventions in Dementia Care. Evidence -Based Practice. London: Jessica Kingsley Publishers, 179 – 190.

Stanyon, M., Streater, A., Coleston-Shields, D., Yates, J., Challis, D., Dening, T., Hoe, J., Llyod -Evans, B., Mitchell, S., Moniz-Cook, E., Poland, F., Prothero, D. & Orrell, M. (2020) Development of an evidence-based ‘Best Practice Model’ for Teams Managing Crisis in Dementia: Protocol. JMIR Research Protocols https://hull-repository.worktribe.com/output/3183590/development-of-an-evidence-based-best-practice-model-for-teams-managing-crisis-in-dementia-protocol

Sweeney, L., Wolverson, E. & Clarke, C. (2020) Understanding the shared experiences of creating a digital life story with individuals with dementia and their spouse. Dementia https://doi.org/10.1177/1471301220970403

Ulstein, I., Manthorpe, J. & Moniz-Cook, E. (2020) Supporting the Supporters: Interventions to reduce Family Distress. In Manthorpe, J. & Moniz-Cook, E.D. (Eds) Timely Psychosocial Interventions in Dementia Care. Evidence -Based Practice. London: Jessica Kingsley Publishers, 166-178.

Watson, R. (2020) Twenty-five years of the EdFED scale: a useful scale for measuring mealtime difficulty in older people with dementia. Nursing Standard (accepted September 2020).

White, C., Dunn, R., Wolverson, E. & Zafeiridi, P. (2020) The views of carers, people living with dementia and healthcare practitioners about the value of online information and peer support. International Journal of Care and Caring https://doi.org/10.1332/239788220X15934528490504

Yates, J., Stanyon, M., Challis, D., Coleston-Shields, D., Dening, T., Hoe, J., Jawahar, K., Lloyd-Evans, B., Moniz-Cook, E., Poland, F., Streater, A., Trigg, E. & Orrell, M. (2020) Developing a model of best practice for teams managing crisis in people with dementia: A consensus approach. BMC Psychiatry, 20 https://doi.org/10.1186/s12888-020-02899-0

2019

Cunnah, K., Dunn, R., Howe, D., Platt, R., Thorpe, J., White, C., Paulson, K. & Wolverson, E. (2019) Improving digital inclusion through training. Training people living with dementia/cognitive impairment and their carers in the use of digital technologies: A practical guide for group facilitators. https://drive.google.com/file/d/1njZXKk9ff0Y6bCSl3A7ybbN96E-VsVRy/view

Cunnah, K., Howe, D., Thorpe, J., Dunn, R., Platt, R., White, C., Paulson, K. & Wolverson, E. (2019) Training people with dementia/cognitive impairment and their carers in the use of web-based supportive technologies. Dementia (Innovative practice). https://doi.org/10.1177/1471301219887592

Dunn, R. & Moniz-Cook, E. (2019) Evaluating interventions for Behaviours that Challenge (BtC) in dementia care – what instruments do specialist practitioners working in the UK use? The FPOP Bulletin, 148, 51-61. https://hull-repository.worktribe.com/output/3183671/evaluating-interventions-for-behaviours-that-challenge-btc-in-dementia-care-what-instruments-do-specialist-practitioners-working-in-the-uk-use 

James, I., Moniz-Cook, E. & Duffy, F. (2019) Special issue: Behaviours that Challenge in dementia care - Guest Editorial. The FPOP Bulletin, 148, 3-5. https://hull-repository.worktribe.com/output/3183708/special-issue-behaviours-that-challege-in-dementia-care-guest-editorial

Howe, D., Thorpe, J., Dunn, R., White, C., Cunnah, K., Platt, R. Paulson, K. & Wolverson, E. (2019) The CAREGIVERSPRO-MMD Platform as an Online Informational and Social Support Tool for People Living With Memory Problems and Their Carers: An Evaluation of User Engagement, Usability and Usefulness. Journal of Applied Gerontology. https://doi.org/10.1177/0733464819885326

Jackson, H. & Wray, J., Gardiner, E. & Flanagan, T. (2019) Involving carers in risk assessment: a study of a structured dialogue between mental health nurses and carers. Journal of Research in Nursing, 24(5), 330–341. https://doi.org/10.1177/1744987119851533  

McDermott, O., Charlesworth, G., Hogervorst E., Stoner C., Moniz-Cook, E.D., Spector, A., Csipke, E. & Orrell, M. (2019) Psychosocial interventions for people with dementia: a synthesis of systematic reviews. Aging & Mental Health, 23(4), 393 - 403. https://doi.org/10.1080/13607863.2017.1423031

Moniz-Cook, E. (2019) Psychosocial approaches to behaviours that challenge care. In: Harrison- Dening, K. (Ed) Evidence-Based Practice in Dementia for Nurses and Nursing Students. London: Jessica Kingsley Publishers. Ch.8, 105-120. https://www.amazon.co.uk/Evidence-Based-Practice-Dementia-Nursing-Students/dp/178592429X

Palese, A., Gonella, S., Kasa, T., Caruzzo, D., Hayter, M. & Watson R. (2019) Negative prompts aimed at maintaining eating independence. Nursing Ethics, 26(7-8), 2158-2171. https://doi.org/10.1177/0969733018819124

Palese, A., Grassetti, L., Zuttion, R., Ferrario, B., Ponta, S., Achil, I., Hayter, M. & Watson, R. (2019) Self-feeding dependence incidence and predictors among nursing home residents: Findings from a 5 year retrospective regional study. Nursing & Health Sciences, 21(3), 297-306. https://doi.org/10.1111/nhs.12596

Palese, A., Grassetti, L., Bressan, V., Decaro, A., Kasa, T., Longorbardi, M., Hayter, H. & Watson, R. (2019) A path analysis on the direct and indirect effects of the unit environment on eating dependence among cognitively impaired nursing home residents. BMC Health Services Research, 19, 775. https://bmchealthservres.biomedcentral.com/articles/10.1186/s12913-019-4667-z

Rehman, A., Likupe, G. & Watson, R. (2019) Mealtime difficulty in older people with dementia. WikiJournal of Medicine, 6(1), 6. https://en.wikiversity.org/wiki/WikiJournal_of_Medicine/Mealtime_difficulty_in_older_people_with_dementia

Shafayat, A., Csipke, E., Bradshaw, L., Charlesworth, G., Day, F., Leung, P., Moniz- Cook, E., Montgomery, A., Morris, S., Mountain, G., Ogollah, R., Sprange, K., Yates, L. & Orrell, M. (2019) Promoting Independence in Dementia (PRIDE): protocol for a feasibility randomised controlled trial. Trials, 20, 709. https://doi.org/10.1186/s13063-019-3838-x

Vernooij-Dassen, M., Moniz-Cook, E., Verhey, F., Chattat, R., Woods, B., Meiland, F., Franco, M., Holmerova, I., Orrell, M. & de Vugt, M. (2019) Bridging the divide between biomedical and psychosocial approaches in dementia research: the 2019 INTERDEM manifesto. Aging & Mental Health. https://doi.org/10.1080/13607863.2019.1693968

Wolverson, E., Birtles, H., Moniz-Cook, E., James, I., Brooker, D. & Duffy, F. (2019) Naming and Framing the Behavioural and Psychological Symptoms of Dementia (BPSD) paradigm: Professional stakeholder perspectives. OBM Geriatrics, 3(4), 19. https://www.lidsen.com/journals/geriatrics/geriatrics-03-04-080

Wolverson, E., Dunn, R. & White, C. (2019). Technology for families of people with dementia. In Astell, A. Smith, S. & Joddrell, P. (Eds) Technology for Dementia: A Guide for Everyday Living. London: Jessica Kingsley Publishers, Ch. 8, 139-148. https://www.amazon.co.uk/Using-Technology-Dementia-Care-Solutions/dp/1785924176

Wright, J., Foster, A., Cooper, C., Sprange, K., Walters, S., Berry, K., Moniz-Cook E., Loban, A., Young, T.A., Craig, C., Dening, T., Lee, E., Beresford-Dent, J., Thompson, B.J., Young, E., Thomas, B.D. & Mountain, G. (2019) Study protocol for a randomised controlled trial assessing the clinical and cost- effectiveness of the Journeying through Dementia (JtD) intervention compared to usual care. BMJ Open, e029207. https://bmjopen.bmj.com/content/9/9/e029207

Yates, L., Csipke, E., Moniz-Cook, E., Leung, P., Walton, H., Charlesworth, G., Spector, A., Hogervorst E., Mountain, G. & Orrell, M. (2019) The development of the Promoting Independence in Dementia (PRIDE) intervention to enhance independence in dementia. Clinical Interventions in Aging, 14, 1615–1630. https://doi.org/10.2147/CIA.S214367

2018

Ballard, C., Corbett A., Orrell, M., Williams, G., Moniz-Cook, E., Romeo, R., Woods, B., Garrod, L., Testad, I., Woodward-Carlton, B. Wenborn, J., Knapp, M. & Fossey, J. (2018) Impact of person- centered care training and person-centered activities on quality of life, agitation and antipsychotic use in people with dementia living in nursing homes: A cluster-randomized controlled trial of the WHELD intervention. PLoS Med, 15, 2, e1002500. https://doi.org/10.1371/journal.pmed.1002500

Berrios, G.E. & Marková, I.S. (2018) Historical and conceptual aspects of motor disorders in the psychoses. Schizophrenia Research (special issue), 200, 5-11. https://doi.org/10.1016/j.schres.2017.09.008

Berrios, G.E. & Marková, I.S. (2018) History of developments in understanding abnormal behavior. In Butcher, J.N & Hooley, J.M. (Eds) Handbook of Psychopathology. Washington DC: American Psychological Association, Ch.2, 13-39. https://www.amazon.com/APA-Handbook-Psychopathology-Understanding-Psychology%C2%AE/dp/1433828367

British Psychological Society (2018) Evidence Briefing: Behaviour that Challenges in Dementia. British Psychological Society, 15 June James, I. & Moniz-Cook, E. https://www.bps.org.uk/sites/www.bps.org.uk/files/Policy/Policy%20-%20Files/Evidence%20briefing%20-%20behaviour%20that%20challenges%20in%20dementia.pdf

Clare, L., Teale, J.C., Toms, G., Kudlicka, A., Evans, I., Abrahams, S., Goldstein, L.H., Hindle, J.V., Ho, A.K., Jahanshahi, M., Langdon, D., Morris, R., Snowden, J.S., Davies, R., Marková, I., Busse, M. & Thompson-Coon, J. (2018) Cognitive rehabilitation, self-management, psychotherapeutic and caregiver support interventions in progressive neurodegenerative conditions: a scoping review. NeuroRehabilitation, 43(4), 443-471. https://pubmed.ncbi.nlm.nih.gov/30412509/

Csipke, E., Yates, L., Moniz-Cook, E., Leung, P., Charlesworth, G., Walton, H., Birt, L. & Orrell, M. (2018) Promoting Independence in Dementia (PRIDE): protocol for a feasibility trial of the PRIDE intervention for living well with mild dementia. International Journal of Clinical Trials, 5(4), 177-185. http://dx.doi.org/10.18203/2349-3259.ijct20184399

Feast, A., Orrell, M., Charlesworth, G., Poland, F., Featherstone, K., Melunsky, N. & Moniz-Cook, E. (2018) Using meta-ethnography to synthesize relevant studies: Capturing the bigger picture in dementia with challenging behavior within families. SAGE Research Methods Cases, https://dx.doi.org/10.4135/9781526444899

Glover, L., Kinsey, D., Clappison, D.J. Gardiner, E. & Jomeen, J. (2018) “I never thought I could do that…”: Findings from an Alexander Technique pilot group for older people with a fear of falling. European Journal of Integrative Medicine, 17, 79-85. https://doi.org/10.1016/j.eujim.2017.11.008

Gove, D., Diaz-Ponce, A., Georges, J.,Moniz-Cook, E., Mountain, G., Chattat, R., Øksnebjerg, L. & The European Working Group of People with Dementia (2018) Alzheimer Europe's position on involving people with dementia in research through PPI (patient and public involvement), Aging & Mental Health, 22(6), 723-729 https://doi.org/10.1080/13607863.2017.1317334

Heap, C. J. & Wolverson, E. (2018) Intensive Interaction and discourses of personhood: A focus group study with dementia caregivers. Dementia. https://doi.org/10.1177/1471301218814389

Hickman, H., Clarke, C., & Wolverson, E. (2018) A qualitative study of the shared experience of humour between people living with dementia and their partners. Dementia. https://doi.org/10.1177/1471301218805895

Holle, D., Köller, L., Moniz-Cook, E. & Halek, M. (2018) Translation and linguistic validation of the German Challenging Behaviour Scale for formal caregivers of people with dementia in nursing homes. Journal of Nursing Measurement, 26(3), 544-565. https://hull-repository.worktribe.com/output/455342/translation-and-linguistic-validation-of-the-german-challenging-behaviour-scale-for-formal-caregivers-of-people-with-dementia-in-nursing-homes

Maidment, I. D., Damery, S., Campbell, N., Seare, N., Fox, C., Iliffe, S., Hilton, A., Brown G., Barnes, N., Wilcock, J., Randle E., Gillespie, S., Barton, G. & Shaw, R. (2018) Medication review plus person- centred care: a feasibility study of a pharmacy-health psychology dual intervention to improve care for people living with dementia. BMC Psychiatry, 18(1), 340. https://bmcpsychiatry.biomedcentral.com/articles/10.1186/s12888-018-1907-4

Manthorpe, J., Hart, C., Watts, S., Goudie, F., Charlesworth, G., Fossey, J. & Moniz-Cook, E. (2018) ‘Practitioners’ understanding of barriers to accessing specialist support by family carers of people with dementia in distress’. International Journal of Care and Caring, 2(1), 109–23. https://doi.org/10.1332/239788218X15187915193354

Marková I.S. (2018) Translational Neuroscience and Psychiatry: a conceptual analysis. Journal of Evaluation in Clinical Practice, special issue, 24(2), 791-796. https://doi.org/10.1111/jep.12914

Øksnebjerg L., Diaz-Ponce, A., Gove, D., Moniz-Cook, E., Mountain, G., Chattat, R. & Woods, B. (2018) Towards capturing meaningful outcomes for people with dementia in psychosocial intervention research: a pan-European consultation. Health Expectations, 21(6), 1056 - 1065. https://doi.org/10.1111/hex.12799

Oliva-Felipe, L., Barrué, C., Cortés, A., Wolverson, E., Antomarini, M., Landrin, I., Konstantinos, V., Paliokas, I. & Cortés, U. (2018) Health Recommender System design in the context of CAREGIVERSPRO-MMD Project. In Proceedings of the 11th Pervasive Technologies Related to Assistive Environments Conference (June pp. 462-469). ACM. https://doi.org/10.1145/3197768.3201558

Palese, A., Bressan, V.,   Kasa, T., Meri, M., Hayter, M. & Watson, R. (2018) Interventions maintaining eating independence in nursing home residents: a multicentre qualitative study. BMC Geriatrics, 18, 92. https://bmcgeriatr.biomedcentral.com/articles/10.1186/s12877-018-0985-y

Palese, A., Grassetti, L ., Bandera, D., Zuttion, R., Ferrario, B., Ponta, S., Hayter, M. & Watson R. (2018) High feeding dependence prevalence in residents living in Italian nursing homes requires new policies: Findings from a regionally based cross-sectional study. Health Policy, 122(3), 301-308. https://doi.org/10.1016/j.healthpol.2018.01.011

Patterson, K., Clarke, C., Wolverson, E. & Moniz-Cook, E. (2018) Through the eyes of others – the social experiences of people with dementia: a systematic literature review and synthesis. International Psychogeriatrics: Special Issue: Social Health, 30(6), 791-805. https://doi.org/10.1017/S1041610216002374

Vernooij-Dassen, M., Moniz-Cook, E. & Jeon, Y-H. (2018) Social Health in dementia: harnessing an applied research agenda. International Psychogeriatrics, 30(6), 775-778. https://doi.org/10.1017/S1041610217002769

White, C., Whitfield, C. & Wray, J. (2018) Providing help, support and care from a distance: summary of findings from an exploratory study of ‘distance carers’ in the UK (Hull University report) https://sparchull.files.wordpress.com/2018/11/distance-caring-final-report-october-2018.pdf

Wray, J., & Pace, K. (2018) Learning diversity in nurse education and practice-Current challenges, contemporary perspectives and innovative solutions. Nurse Education in Practice. 28, A1-A2 https://doi.org/10.1016/j.nepr.2017.12.007

Zafeiridi, P., Paulson, K., Dunn, R., Wolverson, E. & White, C. Thorpe, J.A., Antomarini, M., Cesaroni, F., Scocchera, F., Landrin-Dutot, I., Malherbe, L., Malherbe , L., Lingiah , H., Bérard, M., Gironès, X., Quintana , M., Cortés, U., Barrué, C., Cortés, A., Paliokas, I., Voti, K. & Tzovaras, D. (2018) A Web- Based Platform for People with Memory Problems and Their Caregivers (CAREGIVERSPRO-MMD): Mixed-Methods Evaluation of Usability. JMIR Formative Research. https://formative.jmir.org/2018/1/e4/

2017

Aston, L.,Hilton, A., Moutela, T., Shaw, R., & Maidment, I. (2017) Exploring the evidence base for how people with dementia and their informal carers manage their medication in the community: a mixed studies review. BMC Geriatrics, 17(1), 242. https://doi.org/10.1186/s12877-017-0638-6

Ballard, C., Fossey, J., Corbett, A., Orrell, M., Romero, R., Moniz-Cook, E., Woods, B. & Whittaker, R. (2017) Impact of Wheld Interventions on NPS, Antipsychotic Use and Quality of Life in people with dementia living in Nursing Homes: a CRT. Alzheimer's and Dementia, 13(7), 171. https://doi.org/10.1016/j.jalz.2017.07.011

Ballard, C., Orrell, M., Yongzhong, S., Moniz-Cook, E., Stafford, J., Whitaker, R., Woods, B., Corbett A., Banerjee S., Testad, I., Garrod, L., Khan, Z., Woodward - Carlton, B., Wenbourne, J. & Fossey, J. (2017) Impact of antipsychotic review and non-pharmacological intervention on health-related quality of life in people with dementia living in care homes: WHELD-a factorial cluster randomised controlled trial. International Journal of Geriatric Psychiatry, 32(10), 1094–1103. https://doi.org/10.1002/gps.4572

Berrios, G.E. & Marková, I.S. (2017) Cultural history of depression. In Foster, C. & Herring, J. (Eds) Depression: Law and Ethics. Oxford: Oxford University Press. Ch. 6, 45-57. https://www.oxfordscholarship.com/view/10.1093/oso/9780198801900.001.0001/oso-9780198801900

Berrios, G.E. & Marková, I.S. (2017) The epistemology and classification of ‘madness’ since the 18th century. In Eghegian, G. (Ed) The Routledge History of Madness and Mental Health. Oxon: Routledge. Ch.6, 115-134. https://www.amazon.co.uk/Routledge-History-Madness-Mental-Histories/dp/1138781606

Feast, A., Orrell, M., Russell, I., Charlesworth, G. & Moniz-Cook, E. (2017) The contribution of caregiver psychosocial factors to distress associated with behavioural and psychological symptoms in dementia. International Journal of Geriatric Psychiatry, 32(1), 76–85. https://doi.org/10.1002/gps.4447

Feast, A., Orrell, M., Melunsky, N., Charlesworth, G., Moniz-Cook, E., Featherstone, K. & Poland, F. (2017) Synthesising Qualitative and Quantitative Evidence in Systematic Literature Reviews: Challenges and Methodological Opportunities Using Meta-Ethnography. International Conference on Advances in Evidence-Based Medicine (ICAEMB), 14-15 May, Amsterdam Netherlands (poster).

James, I.A. Watson, R., Whitaker, C., Stokes, G., Hart, C. & Moniz-Cook, E. (2017) Nature of behaviours that challenge in residents living in aged care homes: implications for psychosocial interventions and service development. Psychology of Older People: The FPOP Bulletin, 138, 19-29. https://hull-repository.worktribe.com/output/449018/nature-of-behaviours-that-challenge-in-residents-living-in-aged-care-homes-implications-for-psychosocial-interventions-and-service-development

Maidment, I. D., Aston, L., Moutela, T., Fox, C., & Hilton, A. (2017) A qualitative study exploring medication management in people with dementia living in the community and the potential role of the community pharmacist. Health Expectations, 20(5), 929-942. https://doi.org/10.1111/hex.12534

Moniz-Cook, E., Hart, C., Woods, B., Whitaker, C., James, I., Russell, I., Tudor Edwards, R., Hilton, A., Orrell, M., Campion, P., Stokes, G., Jones, R., Bird, M., Poland, F. & Manthorpe, J. (2017) Challenge Demcare: Management of challenging behaviour in dementia at home and in care homes: Development, evaluation and implementation of an online individualised intervention for care homes; and a cohort study of specialist community mental health care for families. Programme Grants for Applied Research, 5, 15. https://www.ncbi.nlm.nih.gov/books/NBK447072/

Moniz-Cook,E. & James, I. (2017) Behaviour that challenges in dementia care: an update of psychological approaches for home and care home settings. Psychology of Older People: The FPOP. https://hull-repository.worktribe.com/output/456033/behaviour-that-challenges-in-dementia-care-an-update-of-psychological-approaches-for-home-and-care-home-settings

Orrell, M., Hoe, J., Charlesworth, G., Russell, I., Challis, D., Moniz-Cook, E., Knapp, M., Woods, B., Hoare, Z., Aguirre, E., Toot, S., Streater, A., Crellin, N., Whitaker, C., d’Amico, F., Rehil, A. (2017) Support at Home: Interventions to Enhance Life in Dementia (SHIELD) - evidence, development and evaluation of complex interventions. Programme Grants Applied Research, 5, 5. https://www.ncbi.nlm.nih.gov/books/NBK424174/

Orrell, M., Yates, L., Leung, P., Hoare, Z., Burns, A., Kang, S., Knapp, M., Leroi, I., Moniz-Cook, E., Spector, A., Roberts, S., Whitaker, C. Woods, R.T., Russell, I., Pearson, S., Simpson, S., de Waal, H. & Orgeta, V. (2017) The impact of individual Cognitive Stimulation Therapy (iCST) on cognition, quality of life, caregiver health, and family relationships in dementia: a randomized controlled trial. PloS Medicine, 14,3 e1002269. https://doi.org/10.1371/journal.pmed.1002269

Rajkumar, A., Ballard, C., Fossey, J., Orrell, M., Moniz-Cook, E., Woods, R., Murray,J., Whitaker, R. Stafford, J., Knapp, M., Romeo, R., Woodward-Carlton, B. Khan, Z., Testad, I. & Corbett, A. (2017) Epidemiology of Pain in People With Dementia Living in Care Homes: Longitudinal Course, Prevalence, and Treatment Implications. Journal of the American Directors Association [JAMDA], 18(5), 369-454. http://dx.doi.org/10.1016/j.jamda.2017.01.024

Stansfield, J., Stoner, C., Wenbourne, J., Vernooij-Dassen, M., Moniz-Cook, E. & Orrell, M. (2017) Positive Psychology Outcome measures for family caregivers of people living with dementia: a systematic review. International Psychogeriatrics, 29(8), 1281 -1296. https://doi.org/10.1017/S1041610217000655

Watson, R., Bagnasco, A., Catania, G., Aleo, G., Zanini, M. & Sasso L. (2017) The Edinburgh Feeding Evaluation in Dementia Scale: A Longitudinal Study in Nursing Home Residents. Dementia & Geriatric Cognitive Disorders, 44, 196-202. https://doi.org/10.1159/000478519

Watson, R., Palese, A., Zuttion, R., Ferrario, B., Ponta, S., Hayter, M. (2017) Identifying longitudinal sustainable hierarchies in activities of daily living. Archives of Gerontology and Geriatrics, 71, 122-128. https://doi.org/10.1016/j.archger.2017.04.003

Webster, L., Groskreutz, D., Grinbergs-Saull, A., Howard R., O’Brien,J., Mountain, G., Banerjee, S., Woods, B., Perneczky, R., Lafortune, L., Roberts, C., McCleery, J., Pickett, J., Bunn, F., Challis, D., Charlesworth,G., Featherstone, K., Fox, C., Goodman,C., Jones, R., Lamb, S., Moniz-Cook, E., Schneider, J., Shepperd, S., Surr, C., Thompson-Coon, J., Ballard, C., Brayne, C., Burns, A., Clare, L., Garrard, P., Kehoe, P., Passmore, P., Holmes, C., Maidment, I., Robinson, L., & Livingston, G. (2017) Core Outcome Measures for interventions to prevent or slow the progress of dementia for people living with mild to moderate dementia: systematic review and consensus recommendations. PLOS One, 12, 6, e0179521. https://doi.org/10.1371/journal.pone.0179521

Webster, L., Groskreutz, D., Grinbergs-Saull, A., Howard R., O’Brien,J., Mountain,G., Banerjee, S., Woods,B., Perneczky,R., Lafortune, L., Roberts, C., McCleery, J., Pickett, J., Bunn, F., Challis, D., Charlesworth,G., Featherstone, K., Fox, C., Goodman,C., Jones, R., Lamb, S., Moniz-Cook, E., Schneider, J., Shepperd, S., Surr, C., Thompson-Coon, J., Ballard, C., Brayne, C., Burke, O., Burns, A., Clare, L., Garrard, P., Kehoe, P., Passmore, P., Holmes, C., Maidment, I., Murtagh, F., Robinson, L., & Livingston, G. (2017) Development of a core outcome set for disease modification trials in mild to moderate dementia: a systematic review, patient and public consultation and consensus recommendations. Health Technolology Assessment, 21, 26. https://www.journalslibrary.nihr.ac.uk/hta/hta21260/#/abstract

Yennadiou, H. & Wolverson, E. (2017) The experience of epilepsy in later life: An exploration of illness representations. Epilepsy and Behavior, 70, 87-93. https://doi.org/10.1016/j.yebeh.2017.01.033

2016

Ballard, C., Orrell, M., Moniz-Cook, E., Stafford, J., Whittaker, R. Woods, R., Corbett, A., Garrod, L., Khan, Z., Woodward-Carlton, B., Wenbourn, J. & Fossey, J. (2016) Impact of antipsychotic review and non-pharmacological intervention on antipsychotic use, neuropsychiatric symptoms and mortality in people with dementia living in nursing homes: WHELD - A factorial cluster randomised controlled trial. The American Journal of Psychiatry, 173(3), 252-262. http://dx.doi.org/10.1176/appi.ajp.2015.15010130

Berrios, G.E. & Marková, I. S. (2016) The Temporalization of Madness in the 19th Century. (La temporalizzazione della follia nel XIX secolo) Rivista Sperimentale di Freniatria, 140, 13-27.

Clarke, C. & Wolverson, E. (Eds) (2016) Positive Psychology Approaches to Dementia. London: Jessica Kingsley Publishers. https://www.amazon.co.uk/Positive-Psychology-Approaches-Wolverson-Christine/dp/1849056102

Clarke, C., Wolverson, E. & Moniz-Cook,E. (2016) A Positive Psychology Approach to Dementia. In: Clarke, C. & Wolverson, E. (Eds) Positive Psychology Approaches to Dementia. London: Jessica Kingsley. Ch.2, 41 – 66.

Clarke, C. & Irwin, H. (2016) Humour and Dementia. In: Clarke, C. & Wolverson, E. (Eds) Positive Psychology Approaches to Dementia. London: Jessica Kingsley. Ch. 5, 110 – 132.

Clarke, C. & Wolverson, E. (2016) Overview and Ways Forward for a Positive Psychology Approach to Dementia. In Clarke, C. & Wolverson, E. (Eds) Positive Psychology Approaches to Dementia. London: Jessica Kingsley. Ch.12, 152 – 172.

Feast, A., Moniz-Cook, E., Stoner, C., Charlesworth, G. & Orrell, M. (2016) A systematic review of the relationship between Behavioural and Psychological Symptoms (BPSD) and caregiver wellbeing. International Psychogeriatrics, 28(11), 1761–1774. http://dx.doi.org/10.1017/S1041610216000922

Feast, A., Orrell, M., Charlesworth, G., Melunsky, N., Poland, F. & Moniz-Cook, E. (2016) Behavioural and Psychological Symptoms in Dementia (BPSD) and the challenges or family carers: a systematic review. British Journal of Psychiatry, 208(5), 429-434. https://doi.org/10.1192/bjp.bp.114.153684

Hynes, S. M., Field, B., Ledgerd, R., Swinson, T., Wenborn, J., di Bona, L., Moniz-Cook, E., Poland, F. & Orrell, M. (2016) Exploring the need for a new UK occupational therapy intervention for people with dementia and family carers: Community Occupational Therapy in Dementia (COTiD). A focus group study. Aging and Mental Health, 20(7), 762-769. https://doi.org/10.1080/13607863.2015.1037243

Joling, K,, Windle, G., Droes, R., Meiland, F., Van Hout, H., MacNeil Vroomen, J., van de Ven, P., Moniz-Cook, E. & Woods, B. (2016) Factors of resilience in informal caregivers of people with dementia from international data-analysis. Dementia and Geriatric Cognitive Disorders, 42, 198–214. https://doi.org/10.1159/000449131

Kelly, J., Watson, R., Pankratova, M. & Pedzeni A-M (2016) Representation of age and ageing identities in popular music texts. Journal of Advanced Nursing, 72(6), 1325-1334. https://doi.org/10.1111/jan.12916

Maidment, I. D., Aston, L., Hilton, A., Iqbal, N., Child, A. & Shaw, R. (2016) Role of community pharmacists in the use of antipsychotics for behavioural and psychological symptoms of dementia (BPSD): a qualitative study. BMJ open, 6,3 e010278. http://dx.doi.org/10.1136/bmjopen-2015-010278

Maidment, I. D., Shaw, R. L., Killick, K., Damery, S., Hilton, A., Wilcock, J., Barnes, N., Brown, G., Gillespie, S., Fox, C., Barton, G., Iliffe, S. & Seare, N. (2016) Improving the management of behaviour that challenges associated with dementia in care homes: protocol for pharmacy–health psychology intervention feasibility study. BMJ open, 6, 3, e010279. http://dx.doi.org/10.1136/bmjopen-2015-010279

Marková, I.S. & Berrios, G.E. (2016) Research in Psychiatry: concepts and conceptual analysis. Psychopathology, 49, 188-194. https://doi.org/10.1159/000447596

Morris, R.G., Nelis, S.M., Martyr, A., Marková, I.S., Roth, I., Woods, R.T., Whitaker, C.J. & Clare, L. (2016) Awareness of memory task impairment versus everyday memory difficulties in dementia. Journal of Neuropsychology, 10(1), 130-142. https://doi.org/10.1111/jnp.12062

Palese, A., Menegazzi, G., Tullio, A., Zigott- Fuso, M., Hayter, M. & Watson, R. (2016) Functional Decline in Residents Living in Nursing Homes: A Systematic Review of the Literature. Journal of the American Medical Directors Association [JAMDA], 17(8), 694-705. https://doi.org/10.1016/j.jamda.2016.04.002

Patterson, K. & Wolverson, E. (2016) Growth. In Clarke, C. & Wolverson, E. (Eds) Positive Psychology Approaches to Dementia. London: Jessica Kingsley. Ch.7, 152–172.

Price, E. (2016) Looking backward whilst moving forward: LGBT* carers’ perspectives. In Westwood, S. & Price, L. (Eds) Lesbian, Gay, Bisexual and Trans* Individuals Living with Dementia: Concepts, Practice and Rights. Oxon: Routledge Publishers. Ch.10, 138-154.

Rajkumar, A., Ballard, C., Fossey, J., Corbett, A., Woods, B., Orrell, M., Prakash, R., Moniz-Cook, E.D. & Testad, I. (2016) Apathy and its response to antipsychotic review and non-pharmacological interventions in people with dementia living in nursing homes: WHELD - A factorial cluster randomised controlled trial. Journal of the American Directors Association [JAMDA], 17(8), 741–747. https://doi.org/10.1016/j.jamda.2016.04.006

Vernooij-Dassen M & Moniz-Cook E (2016) Person-centred dementia care: moving beyond caregiving. Aging and Mental Health, 20(7), 667-668. https://doi.org/10.1080/13607863.2016.1154017

Vince, A., Clarke, C. & Wolverson, E. (2016) The meaning and experience of well-being in dementia for psychiatrists involved in diagnostic disclosure: a qualitative study. International Psychogeriatrics, 29(1), 93-104. https://doi.org/10.1017/S1041610216001484

Ward, R. & Price, E. (2016) Reconceptualising dementia: towards a politics of senility. In: Westwood, S. & Price, L. (Eds) Lesbian, Gay, Bisexual and Trans* Individuals Living with Dementia: Concepts, Practice and Rights. Oxon: Routledge Publishers. Ch. 5, 65-78.

Wenborn, J., Hynes, S., Moniz-Cook, E., Mountain, G., Poland, F., King, M., Omar, R., Morris, S., Vernooij-Dassen, M., Challis, D., Michie, S., Russell, I., Sackley, C., Graff, M., O’Keeffe, A., Crellin, N. & Orrell, M. (2016) Community occupational therapy for people with dementia and family carers (COTiD-UK) versus treatment as usual (Valuing Active Life in Dementia [VALID] programme): study protocol for a randomised controlled trial. Trials, 17, 65. https://trialsjournal.biomedcentral.com/articles/10.1186/s13063-015-1150-y

Westwood, S. & Price, E. (2016) Lesbian, Gay, Bisexual and Trans* Individuals Living with Dementia: Concepts, Practice and Rights. Oxon: Routledge Publishers. https://www.routledge.com/Lesbian-Gay-Bisexual-and-Trans-Individuals-Living-with-Dementia-Concepts/Westwood-Price/p/book/9781138343344

Westwood, S. & Price, E. (2016) Introduction. In: Westwood, S. & Price, L. (Eds) Lesbian, Gay, Bisexual and Trans* Individuals Living with Dementia: Concepts, Practice and Rights. Oxon: Routledge Publishers. Ch. 1, 1-20. 

Wolverson, E. & Clarke, C. (2016) Hope and Dementia. In: Clarke, C. & Wolverson, E. (Eds) Positive Psychology Approaches to Dementia. London: Jessica Kingsley. Ch.4, 88 – 109.

Wolverson, E., Clarke, C. & Moniz-Cook,E.D. (2016) Living positively with dementia: a systematic review and synthesis of the qualitative literature. Aging and Mental Health, 20(7), 676-699. https://doi.org/10.1080/13607863.2015.1052777

Woods, R., Orrell, M., Bruce, E., Edwards, R., Hoare, Z., Hounsome, B., Keady, J., Moniz-Cook, E., Orgeta, V., Rees, J. & Russell, I. (2016) REMCARE: pragmatic multi-centre randomised trial of reminiscence groups for people with dementia and their family carers: effectiveness and economic analysis. Plos One, 11, 4, e0152843. https://doi.org/10.1371/journal.pone.0152843